This is another good day! My white blood count inched up to 1.0 and my hemoglobin is holding steady at 7.7. Still good signs that my bone marrow is improving, and that I will most likely be going home sometime this week.
So, what's next? About a week after going home, I will have to see my doctor again to have my blood drawn for evaluation. Based on the result and another biopsy, it may mean starting my next round of chemo in a week or two. This will be a 6-day procedure that may be done at home if there is a Home Health Care company that is covered by my insurance, and authorized to administer chemo at home. Otherwise, I will have to have it done here in the hospital. According to the doctor, the second round of chemo will not be as bad as the first round, because my bone marrow will be in better shape and my blood count should be more stable. After chemo, I will once again be under special observation for potential infection, need for blood transfusion, etc. If such is the case, then I will have to be admitted to the hospital again for whatever needs to be done. Once I recover from the chemo, the next step will most likely be the bone marrow transplant. This will take some time to get logistically prepared for it, so it may not happen until a couple of months later.
So far, it seems like things are moving in the right direction. I am excited to go home soon! My hair is almost all gone, so I've decided to just shave it off rather than see clumps of hair messing up my bed and the floor. I'm kinda excited about it. This is my once in a lifetime chance to shave my head, and it may be fun. So, tomorrow, Rob will bring his razor. We use the razor for Rob's buzz cut and tomorrow, we'll get use it on me! We tried to convince our kids to shave their heads, too, for solidarity, but they didn't think that's such a good idea. :-)
That's it for today. Please continue to pray that my blood count will continue to rise so I can go home soon, and that my bone marrow will only produce good cells. And please continue to pray for our spiritual and emotional well-being. May God bless you all.
Monday, August 31, 2009
Sunday, August 30, 2009
8/30/09 - Moving to a bigger room!
I just got the good news from my nurse. My chicken pox is gone with only traces of the rashes left so I am no longer a threat to other patients. It is no longer necessary to keep me in the isolation room, and the bigger room is available - would I like to move to the bigger room? Yes! Yes! Yes! It's just perfect timing that the bigger room that I like is available! Thank you, Lord!
My white blood cells inched up to 0.8 today, and the hemoglobin is holding steady. The fever has not returned. So far, positive signs for potentially going home sometime next week.
I had another beautiful day. I got to spend much time with my family this afternoon - without masks and just enjoying each other's company. I now have a greater appreciation for people and events that I normally take for granted. That, in itself is a blessing. Having my sister in town to help us out is a also tremendous blessing.
Last night, as I reflect on the weeks of my stay in the hospital, it occurred to me that I was happier and more at peace the last few weeks than I have been during some periods in my life when everything was okay. I thought that it was strange and ironic, but then I realized that it is often how we view things rather than the actual events in our lives that determine our happiness and contentment in life. Fortunately for me, at this time in my life when I need it most, and through the prayers of many people, I can truly say that I have joy in my heart and I am experiencing the peace of God that surpasses human understanding. In the stillness of the night, I enjoy some of the sweetest moments with my Savior and my God. And I sleep peacefully in the palm of His hands where He holds me safe in the eye of the storm.
My family is also adjusting well to the situation, thanks to all your prayers. Thank you all for praying not just for my physical healing, but also for the spiritual and emotional health of my family. Please continue to pray for us. The journey is still long. Please do not get tired of praying for us. May God bless you all.
My white blood cells inched up to 0.8 today, and the hemoglobin is holding steady. The fever has not returned. So far, positive signs for potentially going home sometime next week.
I had another beautiful day. I got to spend much time with my family this afternoon - without masks and just enjoying each other's company. I now have a greater appreciation for people and events that I normally take for granted. That, in itself is a blessing. Having my sister in town to help us out is a also tremendous blessing.
Last night, as I reflect on the weeks of my stay in the hospital, it occurred to me that I was happier and more at peace the last few weeks than I have been during some periods in my life when everything was okay. I thought that it was strange and ironic, but then I realized that it is often how we view things rather than the actual events in our lives that determine our happiness and contentment in life. Fortunately for me, at this time in my life when I need it most, and through the prayers of many people, I can truly say that I have joy in my heart and I am experiencing the peace of God that surpasses human understanding. In the stillness of the night, I enjoy some of the sweetest moments with my Savior and my God. And I sleep peacefully in the palm of His hands where He holds me safe in the eye of the storm.
My family is also adjusting well to the situation, thanks to all your prayers. Thank you all for praying not just for my physical healing, but also for the spiritual and emotional health of my family. Please continue to pray for us. The journey is still long. Please do not get tired of praying for us. May God bless you all.
Saturday, August 29, 2009
8/29/09 - Patiently waiting
Another beautiful day! I got to spend time with my family, my sister, some friends and cousins. Also got to rest quite a bit, and have some good food thanks to Alvina! I am getting better everyday. My fever's gone, my platelets are very high, hemoglobin's holding steady at 7.7, and white blood count came down a bit. Overall, very promising. I may be able to go home sometime next week! I'm so excited to be able to go home soon.
The best thing that happened today was...smiles! The doctor no longer required people to wear masks when they come to the room, so I get to see beautiful smiles - from nurses, doctors, the staff, my precious girls, my husband, sister - everyone! It was so nice to see a person's complete face for a change. The smiles really lit up my day!
Please keep praying that my bone marrow will continue producing good cells, and that I will be able to go home soon. Thanks you all so much for your prayers. I know my journey was much less difficult because of all your prayers, words of encouragement and support. May God bless you all.
The best thing that happened today was...smiles! The doctor no longer required people to wear masks when they come to the room, so I get to see beautiful smiles - from nurses, doctors, the staff, my precious girls, my husband, sister - everyone! It was so nice to see a person's complete face for a change. The smiles really lit up my day!
Please keep praying that my bone marrow will continue producing good cells, and that I will be able to go home soon. Thanks you all so much for your prayers. I know my journey was much less difficult because of all your prayers, words of encouragement and support. May God bless you all.
Friday, August 28, 2009
8/28/09 - Hallelujah!
My bone marrow did a wonderful thing. It increased my white blood count from 0.4 to 0.8! That's remarkable! My hemoglobin also went up to 7.7 today. Also wonderful news. The doctor thinks that things are certainly moving in the right direction, and that I should be able to go home soon. We just have to wait for the white blood cells to go up further. Much thanks to everyone who have been praying for me, and for my bone marrow to get up and do its thing.
Last night, I was thinking of the story of how Jesus raised the girl and Lazarus from the dead. It is nothing for Him to wake up my bone marrow to start producing the cells - is anything too difficult for Him? I believe that if we ask anything in His name, according to His will, He will grant our requests. Sometimes, we're just too shy to ask for much because of our limited view of God or other reasons. Let us come boldly to His throne knowing that our Father only has our best interest at heart, and will give us anything we ask for if we ask for the right reasons and according to His will.
Another beautiful day in my world. I got to spend precious time with my family, my sister, and my best friend here. Also got a box of Leonidas chocolates from Rob's coworkers! Yum! Can't wait to go to food paradise soon. I am a hopeless foodie!
In my room with a view, I get to see the news live right outside my window. I shudder seeing the fire and smoke come out of the mountains and how they spread so quickly. I also saw the helicopters and planes flying back and forth with water to put out the fire, but making very little impact. I could only ask for God's mercy that nobody will get hurt or die from the fires. So far, I have not heard of any.
That's it for today. Please continue to pray that my bone marrow will continue producing good cells and that I will be able to go home soon. Thank you all for your prayers and concern, and may God bless you all!
Last night, I was thinking of the story of how Jesus raised the girl and Lazarus from the dead. It is nothing for Him to wake up my bone marrow to start producing the cells - is anything too difficult for Him? I believe that if we ask anything in His name, according to His will, He will grant our requests. Sometimes, we're just too shy to ask for much because of our limited view of God or other reasons. Let us come boldly to His throne knowing that our Father only has our best interest at heart, and will give us anything we ask for if we ask for the right reasons and according to His will.
Another beautiful day in my world. I got to spend precious time with my family, my sister, and my best friend here. Also got a box of Leonidas chocolates from Rob's coworkers! Yum! Can't wait to go to food paradise soon. I am a hopeless foodie!
In my room with a view, I get to see the news live right outside my window. I shudder seeing the fire and smoke come out of the mountains and how they spread so quickly. I also saw the helicopters and planes flying back and forth with water to put out the fire, but making very little impact. I could only ask for God's mercy that nobody will get hurt or die from the fires. So far, I have not heard of any.
That's it for today. Please continue to pray that my bone marrow will continue producing good cells and that I will be able to go home soon. Thank you all for your prayers and concern, and may God bless you all!
Thursday, August 27, 2009
8/27/09 - Waiting game
As the doctor said, it is now a waiting game. We have to wait for my blood count to go up high enough for it to be safe enough for me to be discharged. Everything seems to be improving, but my hemoglobin had gone down slightly and my white blood cell count got stuck at 0.4 the last 3 days. It went up by 0.1 a few days ago. The normal count is 4.1 and up. The doctor says that my bone marrow is still having a hard time generating new cells, and that we just have to wait. In the meantime, they still give me several antibiotics and anti-fungal medication for my colon and fever. Once again, I am being given a lesson in patience. But, I need it now! :-)
This has been another good and uneventful day. LA has had 3 wildfires in the last 2 days - it's just been too dry and too hot. I could see one of them from my window. It's kinda scary to see the fire and smoke. Isn't it humbling to realize that with all the knowledge and technology we have these days, we are still at the mercy of the forces of nature?
I got lots of goodies tonight when my family came to visit. All the gifts and cards that have been accumulating at home finally found its way to me. yey! They really cheered me up. Vic, thanks for your CDs. I am sure they will help me along this journey. Tes, Mariette, Dennis and Tong, thanks for the cards and the extra stuff that came with it. Cynch, I finally saw your books! Katie had already read the book for the girls, and Ellie is in the process of reading it now. I think it will help them with the situation. Thanks for the books for me, too, of course. To Olive, the Uys, Rectos, thanks for sending the books. I have received 2 of them, and I believe the third one should be on its way. Bessie, thanks for the yummy Fettucine Alfredo. That was one of the best I have ever had! We all enjoyed it very much. Thank you.
That's it for today. Another good day to be alive! Please pray that my bone marrow will be strong enough to generate new and beautiful cells, so I can go home soon. Thanks for all your prayers, support, words of encouragement, and may God bless you all!
This has been another good and uneventful day. LA has had 3 wildfires in the last 2 days - it's just been too dry and too hot. I could see one of them from my window. It's kinda scary to see the fire and smoke. Isn't it humbling to realize that with all the knowledge and technology we have these days, we are still at the mercy of the forces of nature?
I got lots of goodies tonight when my family came to visit. All the gifts and cards that have been accumulating at home finally found its way to me. yey! They really cheered me up. Vic, thanks for your CDs. I am sure they will help me along this journey. Tes, Mariette, Dennis and Tong, thanks for the cards and the extra stuff that came with it. Cynch, I finally saw your books! Katie had already read the book for the girls, and Ellie is in the process of reading it now. I think it will help them with the situation. Thanks for the books for me, too, of course. To Olive, the Uys, Rectos, thanks for sending the books. I have received 2 of them, and I believe the third one should be on its way. Bessie, thanks for the yummy Fettucine Alfredo. That was one of the best I have ever had! We all enjoyed it very much. Thank you.
That's it for today. Another good day to be alive! Please pray that my bone marrow will be strong enough to generate new and beautiful cells, so I can go home soon. Thanks for all your prayers, support, words of encouragement, and may God bless you all!
Wednesday, August 26, 2009
8/26/09 - Slowly, but surely getting better
I am slowly, but surely getting better. My platelets have come back to normal levels. My skin rash from the chicken pox and allergic reaction to the medications have been clearing up fast. My abdomen and colon seems to be improving. My white blood count has not improved from yesterday, and my hemoglobin is still very low, but this is normal because my bone marrow got knocked out big time, so it needs time to get back on its feet and start doing its job effectively. Once the blood count comes back to acceptable levels, I can go home! I am so excited about it!
My sister, Verna, has been preparing a special tea to help me get better, and I really appreciate all the help I can get to recover from my state. She will get her blood drawn tomorrow to see if she is my cell match. Ayayayayay! I hate having her go through all the trouble on my account.
A pastor and his wife visited me at the hospital today. I was touched by their concern, even if I do not to to their church. They even gave me some advise about my insurance. They had quite a bit of experience in the area, and also knew people who had Leukemia who easily used up their $2M insurance cap. Our insurance is capped at $1M. Little did I know how quickly we can blow through it with Leukemia treatments. Boy, when it rains, it pours! But I trust that God will pave the way for us to be able to deal with all of these things, like sending the pastor and his wife to warn us ahead of time so we can do something about it.
My hair is falling like crazy. It's kinda funny to see how it it just shows up everywhere. I am glad they mop the floor and change the sheets everyday or the floor may become "carpeted" with my hair. I still have hair left, and it doesn't bother me so much - at least not yet. I don't see my scalp yet, so it's not so bad. Right now, it's not my biggest concern.
This is it for today. I thank you again for your prayers and support, and may God bless you all!
My sister, Verna, has been preparing a special tea to help me get better, and I really appreciate all the help I can get to recover from my state. She will get her blood drawn tomorrow to see if she is my cell match. Ayayayayay! I hate having her go through all the trouble on my account.
A pastor and his wife visited me at the hospital today. I was touched by their concern, even if I do not to to their church. They even gave me some advise about my insurance. They had quite a bit of experience in the area, and also knew people who had Leukemia who easily used up their $2M insurance cap. Our insurance is capped at $1M. Little did I know how quickly we can blow through it with Leukemia treatments. Boy, when it rains, it pours! But I trust that God will pave the way for us to be able to deal with all of these things, like sending the pastor and his wife to warn us ahead of time so we can do something about it.
My hair is falling like crazy. It's kinda funny to see how it it just shows up everywhere. I am glad they mop the floor and change the sheets everyday or the floor may become "carpeted" with my hair. I still have hair left, and it doesn't bother me so much - at least not yet. I don't see my scalp yet, so it's not so bad. Right now, it's not my biggest concern.
This is it for today. I thank you again for your prayers and support, and may God bless you all!
Tuesday, August 25, 2009
8/25/09 - Sister's here!
This has been a good day. I woke up in a better mood than yesterday. I guess it just takes time to accept the fact that I will most likely have to go through bone marrow transplant. If God thinks that that is the best thing for me, so be it. Now my siblings will have to be tested to find my cell match. It takes a long time to get the logistics ready for a bone marrow transplant, so the most likely scenario would be the following:
- Once my blood cells go up to an acceptable level, and when I have no more problems with my body, I will get to go home for a short "vacation".
- While on "vacation", I will have to meet with a bone marrow transplant doctor who will explain all the pros and cons of the procedure. Then, I'll have to decide whether I want a transplant or not.
- I will also have another biopsy to see how well my cells are growing back - office procedure only.
- Then, it's back to the hospital for another round of chemotherapy, similar to my first chemo, but with a stronger dose of the same drugs.
- Then, depending on what we decide to do, I could have a few more rounds of chemo or move on to having the bone marrow transplant done.
My white blood cell count is inching up slowly, and my platelets have gone up nicely, so the doctor thinks these are good signs that my bone marrow is recovering. The rashes from chicken pox and allergic reaction to some medications are disappearing. There is still inflammation in my colon - this is a common side effect. So, I'm still being loaded with antibiotics. The doctors expect my condition to improve in the next several days. That means I may be able to go home soon! Home sweet home! I do miss lying down in my own bed, with soft sheets and nice comforters. These are some of the simple pleasures in life. Of course, food is up there, too. Once I realized that one of the things getting me down was the unpalatable hospital food, I have started asking Rob to bring food for me from restaurants when he comes to visit. I was craving for chinese comfort food, and now I can have it. yey!
The best part of my day was seeing my sister, Verna, in my room this evening! She came to visit with my family. I could feel the love from hundreds of miles away. She couldn't wait to come see me, so instead of getting an economy seat in September (yes, that was the first available seat), she got herself on business class just so she can be here sooner! I am so blessed to have her as my sister! She arrived this afternoon with gifts for my kids and for me. It was a happy reunion despite the circumstances.
That's it for today. Thank you all for your prayers, words of encouragement and bible verses that make this journey less difficult and lonely. To all the people who have helped us with our groceries, and preparing food for the family - a big thank you to you all! For people who sent cards and gifts, thank you, they do help more than you know. For friends who call or text to check-up on me from time to time, I really appreciate it - they do cheer me up. We are truly blessed to have so many people who are willing to go on this difficult journey with us and who support us in so many ways. May God bless you all!
- Once my blood cells go up to an acceptable level, and when I have no more problems with my body, I will get to go home for a short "vacation".
- While on "vacation", I will have to meet with a bone marrow transplant doctor who will explain all the pros and cons of the procedure. Then, I'll have to decide whether I want a transplant or not.
- I will also have another biopsy to see how well my cells are growing back - office procedure only.
- Then, it's back to the hospital for another round of chemotherapy, similar to my first chemo, but with a stronger dose of the same drugs.
- Then, depending on what we decide to do, I could have a few more rounds of chemo or move on to having the bone marrow transplant done.
My white blood cell count is inching up slowly, and my platelets have gone up nicely, so the doctor thinks these are good signs that my bone marrow is recovering. The rashes from chicken pox and allergic reaction to some medications are disappearing. There is still inflammation in my colon - this is a common side effect. So, I'm still being loaded with antibiotics. The doctors expect my condition to improve in the next several days. That means I may be able to go home soon! Home sweet home! I do miss lying down in my own bed, with soft sheets and nice comforters. These are some of the simple pleasures in life. Of course, food is up there, too. Once I realized that one of the things getting me down was the unpalatable hospital food, I have started asking Rob to bring food for me from restaurants when he comes to visit. I was craving for chinese comfort food, and now I can have it. yey!
The best part of my day was seeing my sister, Verna, in my room this evening! She came to visit with my family. I could feel the love from hundreds of miles away. She couldn't wait to come see me, so instead of getting an economy seat in September (yes, that was the first available seat), she got herself on business class just so she can be here sooner! I am so blessed to have her as my sister! She arrived this afternoon with gifts for my kids and for me. It was a happy reunion despite the circumstances.
That's it for today. Thank you all for your prayers, words of encouragement and bible verses that make this journey less difficult and lonely. To all the people who have helped us with our groceries, and preparing food for the family - a big thank you to you all! For people who sent cards and gifts, thank you, they do help more than you know. For friends who call or text to check-up on me from time to time, I really appreciate it - they do cheer me up. We are truly blessed to have so many people who are willing to go on this difficult journey with us and who support us in so many ways. May God bless you all!
Monday, August 24, 2009
8/24/09 - Not so Good News
I got not so good news from the doctor today. They were studying the cells that they got from my biopsy, and found a cell that has turned abnormal. This is not a good sign. So, this puts me in the intermediate risk category. Meaning, I will have to weigh the pros and cons of having just chemotherapy or chemotherapy and bone marrow transplant.
Right now, we're just waiting for my blood count to come back up and for my condition to stabilize - chicken pox & fever. This may take another week or two. Then, I can go home (yey!) until the next round of chemo. While on discharge, I will have to meet with the bone marrow transplant doctor who will explain all its risks and benefits. I will also have to see my doctor for another biopsy to see if the new cells coming out are good. Then, there will be at least one more round of chemo, then bone marrow transplant or more chemo.
I was disappointed with the news. But then, it may be the better way. God knows what is best for me, so I will just have to follow His leading. Please pray that we will be able to make the right decision on whether to have a bone marrow transplant.
This is a long journey for us. Robert and I are getting tired already. Please pray for stamina for the two of us to weather the challenges we face everyday, and to keep our eyes focused on God.
Thanks again for all your prayers and God bless you.
Right now, we're just waiting for my blood count to come back up and for my condition to stabilize - chicken pox & fever. This may take another week or two. Then, I can go home (yey!) until the next round of chemo. While on discharge, I will have to meet with the bone marrow transplant doctor who will explain all its risks and benefits. I will also have to see my doctor for another biopsy to see if the new cells coming out are good. Then, there will be at least one more round of chemo, then bone marrow transplant or more chemo.
I was disappointed with the news. But then, it may be the better way. God knows what is best for me, so I will just have to follow His leading. Please pray that we will be able to make the right decision on whether to have a bone marrow transplant.
This is a long journey for us. Robert and I are getting tired already. Please pray for stamina for the two of us to weather the challenges we face everyday, and to keep our eyes focused on God.
Thanks again for all your prayers and God bless you.
8/23/09 - Thanksgiving
Today is the day of Worship. I am stuck in my room, but I was able to listen to one of my favorite speakers, Charles Stanley, on TV, as well as a new guy named B. Conley. I was reminded of how seldom we thank God for His goodness, so today, I will focus on thanking God for all the answered prayers.
1. I had very little side effects with the chemotherapy such as vomiting, etc.
2. After chemotherapy, I only got chicken pox, diarrhea, fever and inflammation of the colon. These are minor compared to what could have gone wrong in my system.
3. Having a good doctor look after my case.
4. Having nurses and staff that's competent and caring.
5. Having friends and relatives who come to visit me and bring me good food.
6. Having a sister who can come over and help us out during these difficult times.
7. Having friends who can help us out from time to time with food, groceries, etc.
8. Having relatives and friends to help Robert and the girls adjust to the situation.
9. That Robert's boss is understanding enough to cut him some slack if he needs to work from home.
10. The biopsy result was good.
11. My diarrhea has gotten better.
12. My chicken pox is under control, no more itching.
13. My appetite is back, so now I can enjoy the food from friends and relatives, as well those delicious Godiva dark chocolates. yum!
14. Tita Seny, Tita Lolet and Tito Danny came to visit and brought a very nice picture of the last get together that I missed.
15. That family, relatives and friends are praying for my healing everyday.
Thank you, Lord for all your blessings. Thanks to everyone who continue to pray for my healing. God bless you.
1. I had very little side effects with the chemotherapy such as vomiting, etc.
2. After chemotherapy, I only got chicken pox, diarrhea, fever and inflammation of the colon. These are minor compared to what could have gone wrong in my system.
3. Having a good doctor look after my case.
4. Having nurses and staff that's competent and caring.
5. Having friends and relatives who come to visit me and bring me good food.
6. Having a sister who can come over and help us out during these difficult times.
7. Having friends who can help us out from time to time with food, groceries, etc.
8. Having relatives and friends to help Robert and the girls adjust to the situation.
9. That Robert's boss is understanding enough to cut him some slack if he needs to work from home.
10. The biopsy result was good.
11. My diarrhea has gotten better.
12. My chicken pox is under control, no more itching.
13. My appetite is back, so now I can enjoy the food from friends and relatives, as well those delicious Godiva dark chocolates. yum!
14. Tita Seny, Tita Lolet and Tito Danny came to visit and brought a very nice picture of the last get together that I missed.
15. That family, relatives and friends are praying for my healing everyday.
Thank you, Lord for all your blessings. Thanks to everyone who continue to pray for my healing. God bless you.
Saturday, August 22, 2009
8/22/09 - Vietnamese Porridge
I had a good day today. My family was here for a longer visit this morning because it was a weekend. It was fun just hanging around each other, not really talking about anything important and not really doing anything together - just like when we were at home. Then it was time for to leave for their play date and for me to take a nap.
The girls are having their first sleepover, so they were both excited. Rob will also sleep over just to make sure everything went okay. It was going to be at Rob's best friend's house. His daughter is one of our girls' oldest and dearest friends.
As I was reading my emails this afternoon, I read that Alvina may bring me lugao (porridge) either today or tomorrow. I was hoping she would bring it today, and even dreamt that she did when I took a nap. When I woke up form my nap, there she was, sitting in front of me with the ugly mask everyone had to wear. And she brought Vietnamese lugao - do I want fish or chicken? I was very happy. I have been craving for lugao for a while now, and although I had arroz caldo from Bessie the other day, I could really have more. I never had Vietnamese lugao before, but they're good! It is like the rice version of their Pho, which I also like. There's something soothing about lugao when I'm sick. Maybe because I was always given lugao whenever I was sick as a child. It is easy to digest and the soup could be very nutritious. I had to dig in even while Alvina was here because I am not allowed to reheat food - like I needed an excuse! :-)
I was able to talk to my mom briefly. She called when I was taking a nap, so she kept it short. Just wanted to know the results of the biopsy. Later that evening, Cristina came to visit after her shift was over. It was always nice to see my best friend.
The new challenge for my doctors these days is to find antibiotics/antifungal medication that don't make me break out in rashes. So far, I think we've tried 3 kinds. I hope they find one that's suitable for me soon.
That's it for today. Prayer requests - new healthy, beautiful looking white cells; bye-bye to chicken pox; and antibiotics/antifungal meds that don't give me a rash. Answered prayer: my diarrhea is gone, and I think I'm almost back to normal now.
Thank you again for all your prayers and God bless you all.
The girls are having their first sleepover, so they were both excited. Rob will also sleep over just to make sure everything went okay. It was going to be at Rob's best friend's house. His daughter is one of our girls' oldest and dearest friends.
As I was reading my emails this afternoon, I read that Alvina may bring me lugao (porridge) either today or tomorrow. I was hoping she would bring it today, and even dreamt that she did when I took a nap. When I woke up form my nap, there she was, sitting in front of me with the ugly mask everyone had to wear. And she brought Vietnamese lugao - do I want fish or chicken? I was very happy. I have been craving for lugao for a while now, and although I had arroz caldo from Bessie the other day, I could really have more. I never had Vietnamese lugao before, but they're good! It is like the rice version of their Pho, which I also like. There's something soothing about lugao when I'm sick. Maybe because I was always given lugao whenever I was sick as a child. It is easy to digest and the soup could be very nutritious. I had to dig in even while Alvina was here because I am not allowed to reheat food - like I needed an excuse! :-)
I was able to talk to my mom briefly. She called when I was taking a nap, so she kept it short. Just wanted to know the results of the biopsy. Later that evening, Cristina came to visit after her shift was over. It was always nice to see my best friend.
The new challenge for my doctors these days is to find antibiotics/antifungal medication that don't make me break out in rashes. So far, I think we've tried 3 kinds. I hope they find one that's suitable for me soon.
That's it for today. Prayer requests - new healthy, beautiful looking white cells; bye-bye to chicken pox; and antibiotics/antifungal meds that don't give me a rash. Answered prayer: my diarrhea is gone, and I think I'm almost back to normal now.
Thank you again for all your prayers and God bless you all.
8/21/09 - Biopsy Result
The biopsy result came out today. Good news is that they did not see any Leukemia cells! Not so good news is that they did see some abnormal cells. The doctor thinks that these may be normal cells that reacted to the chemo. My poor normal cells! I have so few of them left, and some turned abnormal.
Given the result, the next step would be to have another biopsy in a week or 2 when my blood count starts going up. Right now, it is still very low. That is why I am tired most of the time. I spend most of my days sleeping, eating, using the bathroom, and sleeping some more. Of course, I enjoy visits from my family and blogging to keep everyone posted. If I fail to blog for a day, that just means I was too tired and needed to rest.
I had a busy day yesterday. They got an infectious doctor on board to help figure out why my fever won't go down. So, more interviews, and also a CT scan was done to check my sinuses, chest and abdomen for infections. They found nothing in the sinuses and chest, but they did see that I had inflammation in my colon. So, more antibiotics were given. Sometimes, I feel like a walking pharmacy with all the drugs they're drowning me in. Well, they're the experts so I can only follow their lead.
I can't wait to go home. I get to go home for a little bit before my 2nd round of chemo, but the date depends on how well I get over the chicken pox, how much blood my body is able to produce, my fever, and any other complications I may have between now and then. As my doctor had warned me from the beginning, for Leukemia patients, the chemo is the easy part. It is the weeks after the chemo that could cause more problems for the patient.
Please pray that I can go home soon. And that all the new cells forming in my body are only normal cells, and that they will come out quickly. Also pray for the complete healing of my chicken pox and colon.
Thank you all for your prayers and God bless you!
Given the result, the next step would be to have another biopsy in a week or 2 when my blood count starts going up. Right now, it is still very low. That is why I am tired most of the time. I spend most of my days sleeping, eating, using the bathroom, and sleeping some more. Of course, I enjoy visits from my family and blogging to keep everyone posted. If I fail to blog for a day, that just means I was too tired and needed to rest.
I had a busy day yesterday. They got an infectious doctor on board to help figure out why my fever won't go down. So, more interviews, and also a CT scan was done to check my sinuses, chest and abdomen for infections. They found nothing in the sinuses and chest, but they did see that I had inflammation in my colon. So, more antibiotics were given. Sometimes, I feel like a walking pharmacy with all the drugs they're drowning me in. Well, they're the experts so I can only follow their lead.
I can't wait to go home. I get to go home for a little bit before my 2nd round of chemo, but the date depends on how well I get over the chicken pox, how much blood my body is able to produce, my fever, and any other complications I may have between now and then. As my doctor had warned me from the beginning, for Leukemia patients, the chemo is the easy part. It is the weeks after the chemo that could cause more problems for the patient.
Please pray that I can go home soon. And that all the new cells forming in my body are only normal cells, and that they will come out quickly. Also pray for the complete healing of my chicken pox and colon.
Thank you all for your prayers and God bless you!
Thursday, August 20, 2009
8/20/09 - Another bone marrow biopsy
The highlight of the day was the bone marrow biopsy. Based on what I had to go through the first time, I was really scared of it. Thankfully, my new doctor listens and believes me when I say that I have very low pain tolerance. So, in addition to the Lidocaine, she also gave me some Morphine. The experience was so much better. I did not feel as much pain as I did the first time. I was wondering when I will start hallucinating and singing Strawberry Fields Forever. None of that. I just felt very relaxed.
I woke up from the biopsy with my friend Bessie sitting in front of me, waiting for me to wake up and to let me know that she has arroz caldo waiting for me! Yum! My first really good meal since I came into the hospital. That was quite a blessing! Thanks, Bessie!
We may know by tomorrow whether the chemo worked based on the biopsy. Please, please, please, please let the chemo work! If it did, the next biopsy will be in a week or so to see if my new cells are good. Please, please, please, please let the new cells be good cells!
That's it for today. Got some really nice calls, got to spend some time with the family, and now it is time to sleep.
Thank you for your prayers. We know it will be a long journey. And I appreciate your commitment to keep me and my family in your prayers. God bless you all.
I woke up from the biopsy with my friend Bessie sitting in front of me, waiting for me to wake up and to let me know that she has arroz caldo waiting for me! Yum! My first really good meal since I came into the hospital. That was quite a blessing! Thanks, Bessie!
We may know by tomorrow whether the chemo worked based on the biopsy. Please, please, please, please let the chemo work! If it did, the next biopsy will be in a week or so to see if my new cells are good. Please, please, please, please let the new cells be good cells!
That's it for today. Got some really nice calls, got to spend some time with the family, and now it is time to sleep.
Thank you for your prayers. We know it will be a long journey. And I appreciate your commitment to keep me and my family in your prayers. God bless you all.
8/19/09 - I had a bad day
The day started well with my first good meal in a couple of days. Oatmeal with Ghirarhelli chocolate powder, orange juice with wheat grass powder and a banana! Bessie got the Ghirardelli chocolate for me from the supermarket. It definitely improved the taste of the oatmeal. The wheat grass powder didn't taste as bad as the shots they give you at Jamba Juice, so that's good as well. And finally, bananas! Glorious bananas! I have been trying to get bananas the last several days from Room Service, but they keep telling me I am not allowed to order it. The computer says, "No raw fruits and vegetables allowed". But my doctors keep telling me it is okay because I can peel the bananas. Aach! Finally got my doctor to let Room Service know that I CAN have bananas.
Then, the pain started. I have been getting stomach cramps on and off the last several days, but yesterday, it was almost constantly there. I was even afraid to move, because it felt like moving would trigger another cramping spell. How bad was it? Imagine a huge canker sore inside your lower abdomen. So, any food or drink I take will have to go through it and cause it to be sore. Ayayayayayay! It was bad. They finally put me on Donna Bella pills that were supposed to soothe the cramping. My new favorite Italian food is now Donna Bella!
My diarrhea had eased up a bit with the combination of Lomotil and Immodium tablets. They still couldn't figure out what caused the diarrhea. No bacteria, no parasites. No, it was not the cream puff. It might have caused 1 days' worth of diarrhea, but not this prolonged saga. At this point, the doctors are almost ready to just write it off as a side effect of the chemo and/or all the antibiotics that I have been taking all this time.
The chicken pox is getting better each day. The sores a slowly looking better. My fever's still on and off and once again, the doctor could not figure out why I have been getting this fever. They were afraid I have an infection but could not find any. I'm not sure if it is good or bad.
New development: jaundice. The white around my eyes have turned really yellowish - almost greenish. I just looked at myself in the mirror this morning and it looks wierd! Oh well, with my bilirubin being low, this was bound to happen. It is not hepatitis and not contagious, in case you're wondering. Too bad Halloween is still months away. My eyes could certainly freak some people out.
Katie, Ellie and Rob came for a visit last night. And they had a big box of Godiva dark chocolates with them! Thanks, Cynch! Normally, my palates would be doing their happy dance and I would be all giggly inside just wanting to get at those soft, yummy morsels of paradise. But not last night. That's when I realized I was really having a bad day! I didn't eat any of the chocolates yet. They're too good to be wasted on bad days. I want to get at them when I can eat them with gusto. Not too far in the future, for sure.
Katie is starting to feel really bad about this whole thing. She misses me a lot and she has been asking difficult questions now. Last night, after telling me how badly she feels about what I had to go through, she asked me, "why you?" The only thing I could think of is "Why not?". She is asking the ageless question about Pain and Suffering, and why bad things happen to good people? She told me weeks ago that it is very difficult for her to understand all this. My poor 8-yr old girl, trying to grapple with questions most people don't even start thinking about until they are much older. She has always been mature for her age. What do I tell her? I want to tell her that God is sovereign and will do what He chooses to do. That God's ways are not our ways and His thoughts are not our thoughts. That even if we don't understand anything that is happening, God is in control and His character never changes. He is always all good and all loving. That something far better than the pain and suffering we will go through will come out of this, either in our lifetime or beyond. But how do I tell an 8-yr old all these? I just said a prayer that God will reveal Himself to her in a way that she can understand. This is one of those rare occasions when I am at a loss for words.
I will have my second biopsy in twenty minutes to see if the chemo worked. I am not looking forward to it. This time, they will use Morphine in addition to Lidocaine to help me go through it without freaking out like last time. I shall get myself ready for it now.
Thank you all for your prayers and God bless you all.
Then, the pain started. I have been getting stomach cramps on and off the last several days, but yesterday, it was almost constantly there. I was even afraid to move, because it felt like moving would trigger another cramping spell. How bad was it? Imagine a huge canker sore inside your lower abdomen. So, any food or drink I take will have to go through it and cause it to be sore. Ayayayayayay! It was bad. They finally put me on Donna Bella pills that were supposed to soothe the cramping. My new favorite Italian food is now Donna Bella!
My diarrhea had eased up a bit with the combination of Lomotil and Immodium tablets. They still couldn't figure out what caused the diarrhea. No bacteria, no parasites. No, it was not the cream puff. It might have caused 1 days' worth of diarrhea, but not this prolonged saga. At this point, the doctors are almost ready to just write it off as a side effect of the chemo and/or all the antibiotics that I have been taking all this time.
The chicken pox is getting better each day. The sores a slowly looking better. My fever's still on and off and once again, the doctor could not figure out why I have been getting this fever. They were afraid I have an infection but could not find any. I'm not sure if it is good or bad.
New development: jaundice. The white around my eyes have turned really yellowish - almost greenish. I just looked at myself in the mirror this morning and it looks wierd! Oh well, with my bilirubin being low, this was bound to happen. It is not hepatitis and not contagious, in case you're wondering. Too bad Halloween is still months away. My eyes could certainly freak some people out.
Katie, Ellie and Rob came for a visit last night. And they had a big box of Godiva dark chocolates with them! Thanks, Cynch! Normally, my palates would be doing their happy dance and I would be all giggly inside just wanting to get at those soft, yummy morsels of paradise. But not last night. That's when I realized I was really having a bad day! I didn't eat any of the chocolates yet. They're too good to be wasted on bad days. I want to get at them when I can eat them with gusto. Not too far in the future, for sure.
Katie is starting to feel really bad about this whole thing. She misses me a lot and she has been asking difficult questions now. Last night, after telling me how badly she feels about what I had to go through, she asked me, "why you?" The only thing I could think of is "Why not?". She is asking the ageless question about Pain and Suffering, and why bad things happen to good people? She told me weeks ago that it is very difficult for her to understand all this. My poor 8-yr old girl, trying to grapple with questions most people don't even start thinking about until they are much older. She has always been mature for her age. What do I tell her? I want to tell her that God is sovereign and will do what He chooses to do. That God's ways are not our ways and His thoughts are not our thoughts. That even if we don't understand anything that is happening, God is in control and His character never changes. He is always all good and all loving. That something far better than the pain and suffering we will go through will come out of this, either in our lifetime or beyond. But how do I tell an 8-yr old all these? I just said a prayer that God will reveal Himself to her in a way that she can understand. This is one of those rare occasions when I am at a loss for words.
I will have my second biopsy in twenty minutes to see if the chemo worked. I am not looking forward to it. This time, they will use Morphine in addition to Lidocaine to help me go through it without freaking out like last time. I shall get myself ready for it now.
Thank you all for your prayers and God bless you all.
Tuesday, August 18, 2009
8/18/09 - Renewed Energy
Since last night, I had 2 units of blood, 1 bag of platelets, 1 bag of anti-viral medicine, 1 bag of anibiotics, 1 bag of electrolytes (I think), x bags of maintenance fluids and maybe a bag for anti-nausea, all pushed down my veins into my body. Now, I feel much better. No longer tired like yesterday.
For those who are feeling bad for me, thinking I got poked a hundred times last night, don't feel so bad. They already put a catheter with 2 ports in my chest from day 1 of chemo to make all these easier on me and the staff. Once in a while, they still need to poke me for blood or other things, but it's not so bad. I don't feel a thing when they put all that stuff into me, or when they draw blood from me through the ports. I just feel like a borg walking around with an attachment sewn to my skin. Wish it came with 7 of 9's body, though. For non-trekkies, "7 of 9" is a borg with an oo-la-la figure.
I still have no appetite, and could hardly tolerate any of the hospital food. The only thing I enjoyed eating today were chocolates! I got another bouquet of flowers from Rob's friends that came with a cute little teddy bear doctor and a bag of chocolates. The nurses got to enjoy the flowers until Rob brought them home, my girls got to enjoy playing with the teddy bear, and I got to enjoy the chocolates! Yum! Thanks, Eric, Marco, Naz, Marilyn and Kristen!
My chicken pox is getting better, but they still couldn't figure out why I am having diarrhea. They thought it was the bacterial infection people get when going through chemo - but that was not it. Next, they will test for parasites. I hope they find the culprit soon.
In 2 days, I get my next bone marrow biopsy. Then, my next biopsy will be in another week or two. Ouch! The doctor will see how the new cells are developing. Please pray that all the cell growing in my body are only good cells! Please pray very, very hard the next several days because this is crucial. If my cells are grow out good, then all I need is more rounds of chemo - still a long process but faster and simpler. If the cells grow out bad, then I will need more chemo and bone marrow transplant. This is a more involved and riskier procedure. Please pray very hard for me the next several days.
Thank you everyone for your prayers and Gob bless you!
For those who are feeling bad for me, thinking I got poked a hundred times last night, don't feel so bad. They already put a catheter with 2 ports in my chest from day 1 of chemo to make all these easier on me and the staff. Once in a while, they still need to poke me for blood or other things, but it's not so bad. I don't feel a thing when they put all that stuff into me, or when they draw blood from me through the ports. I just feel like a borg walking around with an attachment sewn to my skin. Wish it came with 7 of 9's body, though. For non-trekkies, "7 of 9" is a borg with an oo-la-la figure.
I still have no appetite, and could hardly tolerate any of the hospital food. The only thing I enjoyed eating today were chocolates! I got another bouquet of flowers from Rob's friends that came with a cute little teddy bear doctor and a bag of chocolates. The nurses got to enjoy the flowers until Rob brought them home, my girls got to enjoy playing with the teddy bear, and I got to enjoy the chocolates! Yum! Thanks, Eric, Marco, Naz, Marilyn and Kristen!
My chicken pox is getting better, but they still couldn't figure out why I am having diarrhea. They thought it was the bacterial infection people get when going through chemo - but that was not it. Next, they will test for parasites. I hope they find the culprit soon.
In 2 days, I get my next bone marrow biopsy. Then, my next biopsy will be in another week or two. Ouch! The doctor will see how the new cells are developing. Please pray that all the cell growing in my body are only good cells! Please pray very, very hard the next several days because this is crucial. If my cells are grow out good, then all I need is more rounds of chemo - still a long process but faster and simpler. If the cells grow out bad, then I will need more chemo and bone marrow transplant. This is a more involved and riskier procedure. Please pray very hard for me the next several days.
Thank you everyone for your prayers and Gob bless you!
Monday, August 17, 2009
8/17/09 - Sleeping Beauty
My major accomplishment for today is sleeping, with frequent trips to the bathroom because of my diarrhea. I didn't realize I could sleep so much! My prince charming and my darling little "dwarves" came for a short visit, and it was back to sleep again.
I know some people tried to reach me today, but I was too tired to answer the phone. I just wanted to sleep. This was because of my low blood count, hemoglobin and platelets. They have gone down really low. Hence, the tiredness. I got 1 unit of platelets and 2 units of blood tonight, so that should give me more energy tomorrow.
I can't wait for this chicken pox and diarrhea to be over. All I had today was 2 Jellos and small piece of bread - just had no appetite. My best friend gave me a useful tip early on. She said that, during bad days (and there will be bad days), that I should remind myself that "This, too, shall pass." That helped. I also started thinking about all the things I am still thankful for, so I didn't feel so bad after that.
I received a book from a dear friend - Grace for the Moment. Thanks, Pinky! I just started reading it, but the even the title really helped. I was reminded that God's grace is sufficient for me. And that is enough for me.
Thank you all for your prayers and God bless you.
I know some people tried to reach me today, but I was too tired to answer the phone. I just wanted to sleep. This was because of my low blood count, hemoglobin and platelets. They have gone down really low. Hence, the tiredness. I got 1 unit of platelets and 2 units of blood tonight, so that should give me more energy tomorrow.
I can't wait for this chicken pox and diarrhea to be over. All I had today was 2 Jellos and small piece of bread - just had no appetite. My best friend gave me a useful tip early on. She said that, during bad days (and there will be bad days), that I should remind myself that "This, too, shall pass." That helped. I also started thinking about all the things I am still thankful for, so I didn't feel so bad after that.
I received a book from a dear friend - Grace for the Moment. Thanks, Pinky! I just started reading it, but the even the title really helped. I was reminded that God's grace is sufficient for me. And that is enough for me.
Thank you all for your prayers and God bless you.
Sunday, August 16, 2009
8/16/09 - Relief
The anti-viral medication is taking effect on my chicken pox. My sores are no longer as itchy as they were yesterday. I am still getting new sores on my legs, but they are not bad as the ones on my arms. I hope to get over this chicken pox in the next few days.
One thing I miss about being in the isolation room is SMILES. Everyone is required to wear a mask before entering my room. So, in the last few days, I could only see people's eyes and hear the smile in the voices, but not actually see them. I should smile at myself more often in the bathroom mirror to cheer myself up! It would be nice to get out of this room and back to a regular room soon, though.
My diarrhea got worse today. Maybe because of the cream puff I ate. That was foolish of me. Now I am paying for it. I will be wiser next time. I have learned my lesson.
It was so nice to hear my mother's voice on the phone today. I know she is the one who worries about me the most, and suffers with me as I go through this. Now that I am a mother, I can understand better what goes on in a mother's heart. I wish I could spare her the pain, but the choice is not mine to make. I am just thankful that she is a godly woman, and she knows that God will not let me go through more than I can bear.
Hearing my children's laughter as they play thumb war with each other was the highlight of my day. I love listening to their cute little voices, especially when they are laughing. We also got to watch Ratatouile on TV together. Wish I could kiss those cute little cheeks and hug them tight. Patience. Just a few more days...
Another short day for me. I slept poorly last night, so I spent most of the day sleeping to make up for it. I hope I sleep better tonight.
Please continue to pray that my chicken pox and diarrhea will go away soon, and that I will not contract any other sickness in the coming days. Also pray that the new cells growing in my body will only be good cells, and for a good night's rest. Please continue to pray for my husband and children, that they will continue to adjust well to the situation.
Thank you for your prayers and God bless you all.
One thing I miss about being in the isolation room is SMILES. Everyone is required to wear a mask before entering my room. So, in the last few days, I could only see people's eyes and hear the smile in the voices, but not actually see them. I should smile at myself more often in the bathroom mirror to cheer myself up! It would be nice to get out of this room and back to a regular room soon, though.
My diarrhea got worse today. Maybe because of the cream puff I ate. That was foolish of me. Now I am paying for it. I will be wiser next time. I have learned my lesson.
It was so nice to hear my mother's voice on the phone today. I know she is the one who worries about me the most, and suffers with me as I go through this. Now that I am a mother, I can understand better what goes on in a mother's heart. I wish I could spare her the pain, but the choice is not mine to make. I am just thankful that she is a godly woman, and she knows that God will not let me go through more than I can bear.
Hearing my children's laughter as they play thumb war with each other was the highlight of my day. I love listening to their cute little voices, especially when they are laughing. We also got to watch Ratatouile on TV together. Wish I could kiss those cute little cheeks and hug them tight. Patience. Just a few more days...
Another short day for me. I slept poorly last night, so I spent most of the day sleeping to make up for it. I hope I sleep better tonight.
Please continue to pray that my chicken pox and diarrhea will go away soon, and that I will not contract any other sickness in the coming days. Also pray that the new cells growing in my body will only be good cells, and for a good night's rest. Please continue to pray for my husband and children, that they will continue to adjust well to the situation.
Thank you for your prayers and God bless you all.
Saturday, August 15, 2009
8/15/09 - Itchy, itchy, itchy!
Hello, everyone! I had a very short day today, because I was asleep more than half the time. They had to take more blood from me last night, plus a chest x-ray, so by the time everyone left, I was wide awake and got very little sleep. The early part of my day consists of sleeping, eating and scratching. I finally had to ask for calamine lotion to relieve the itchiness. Still thankful that my bumps are localized only in some areas. My back is clear - that's a good thing because it would be awful for sleeping. It has spread from my scalp to my butt, but still tolerable with calamine lotion. The doctor said that the antiviral drug will start working a couple of days after they started administering it, so I am patiently waiting - just one or 2 more days...
Also have a bad case of diarrhea now. Immodium to the rescue!
Bright part of the day is to realize that even if I'm in isolation, I still have a view of the mountains (LA haze permitting) and trees. I was able to read emails today - it always cheers me up. The call from my sister to confirm that she's arriving on the 25th was great news! It was also a treat to see my dear old friend Bessie, especially when she brought Beard Papa's with her. I know it's not good for me because of my diarrhea, but I couldn't resist. Yum! My kids and Robert came to visit in the afternoon - that just made my day! I have sores on the back of my hands, so no holding hands with Rob anymore. Boy, this feels like we're back in the early days of courtship! Maybe I should consider joining the Taliban. ha! ha! ha!
It is now a waiting game. Waiting to save my body if anything goes wrong while my immune system is down. And waiting for my bone marrow to produce new stem cells and blood. In a week, I will have another bone marrow biopsy to see if the new stem cells are producing good white blood cells or not. If the new white blood cells are good, I may just have to go through more rounds of chemo to make sure any bad cells that were undetected get wiped out. So the whole cycle will repeat a few more times. If the cells are bad, then it may require a bone marrow transplant. This is a more complicated and riskier procedure, so I would rather not have to go through it.
Please pray for my chicken pox and diarrhea, and that no other illnesses will manifest itself during this time. More importantly, please pray that only good cells will be produced - all bad cells banished from my body!
The human body is amazing. The process of creation and renewal happens without any intervention from us, and we don't even think about it most of the time. We take all of these things for granted. God put the most important things on autopilot lest we mess things up for ourselves - I know I would. I marvel at the greatness of God in these unseen things. He who created the universe is also in control of what goes on in the tiniest part of my body. And with all the things going on in the universe, He still cares for this little child who is counting on His grace and mercy. And he listens to all our prayers amidst the "noise" in the universe. How great is that?! It reminds me of one of my favorite songs "How Great Thou Art".
That's it for today. Thank you once again for all your prayers and God bless you all.
Also have a bad case of diarrhea now. Immodium to the rescue!
Bright part of the day is to realize that even if I'm in isolation, I still have a view of the mountains (LA haze permitting) and trees. I was able to read emails today - it always cheers me up. The call from my sister to confirm that she's arriving on the 25th was great news! It was also a treat to see my dear old friend Bessie, especially when she brought Beard Papa's with her. I know it's not good for me because of my diarrhea, but I couldn't resist. Yum! My kids and Robert came to visit in the afternoon - that just made my day! I have sores on the back of my hands, so no holding hands with Rob anymore. Boy, this feels like we're back in the early days of courtship! Maybe I should consider joining the Taliban. ha! ha! ha!
It is now a waiting game. Waiting to save my body if anything goes wrong while my immune system is down. And waiting for my bone marrow to produce new stem cells and blood. In a week, I will have another bone marrow biopsy to see if the new stem cells are producing good white blood cells or not. If the new white blood cells are good, I may just have to go through more rounds of chemo to make sure any bad cells that were undetected get wiped out. So the whole cycle will repeat a few more times. If the cells are bad, then it may require a bone marrow transplant. This is a more complicated and riskier procedure, so I would rather not have to go through it.
Please pray for my chicken pox and diarrhea, and that no other illnesses will manifest itself during this time. More importantly, please pray that only good cells will be produced - all bad cells banished from my body!
The human body is amazing. The process of creation and renewal happens without any intervention from us, and we don't even think about it most of the time. We take all of these things for granted. God put the most important things on autopilot lest we mess things up for ourselves - I know I would. I marvel at the greatness of God in these unseen things. He who created the universe is also in control of what goes on in the tiniest part of my body. And with all the things going on in the universe, He still cares for this little child who is counting on His grace and mercy. And he listens to all our prayers amidst the "noise" in the universe. How great is that?! It reminds me of one of my favorite songs "How Great Thou Art".
That's it for today. Thank you once again for all your prayers and God bless you all.
Friday, August 14, 2009
8/14/09 - Chemo Done
My chemo treatment ended this afternoon. Yipee! I had some diarrhea but no other side effects from the medication. The doctor already gave me antiviral IV for the chicken pox, and she said it will improve in a couple of days. Please pray that it will. This evening, I developed a low-grade fever. My immune system is really bad, so anything could go wrong. Please pray that I won't have any complications, especially when it concerns the major organs.
I had my hair cut shorter in anticipation of hair loss at Salon de Marlene. Actually, Marlene is one of our dear friends who offered to help chop off my hair in my room. I was told having it cut shorter first is lass traumatic than shaving it off in one go. Once my hair starts falling off, then we'll just shave it off. Rob and I will have matching hairdo then - how sweet!
I received beautiful flowers from work yesterday, and more beautiful flowers today from the Arcadia Rotary. How thoughtful! As much as I would like to keep them in my room, I had leave them at the nurse's station and send them home with Rob because I'm not allowed to have them in my room. I also received a funny dvd from Manolo whom I haven't seen in ages. Manolo, if you're reading this, thank you! I don't have your email address here, so I'll have to email you through our common friends. I agree with your card - laughter is the best medicine. I miss you.
Special calls from my sister and friends near and far really brightened up my day. No friends like old friends! And the best part of the day is of course seeing my hubby and little ones. Since I was transferred to an isolation unit yesterday, they had to wear masks when they enter the room. So how do I kiss those cute little cheeks now? Also can't even kiss my husband. We all just settled for hugs and virtual kisses. How proper!
I feel more tired today than usual. The doctor said this is normal and warned me that it may get worse. Please pray that all I will quickly recover from the chicken pox and diarrhea and that there won't be any more virus or bacteria coming out.
Please continue to pray for my healing, for Robert not to get too tired from the double duty, and for the girls not to miss me too much while I'm in the hospital. Thank you once again for your concern and prayers and God bless you all.
I had my hair cut shorter in anticipation of hair loss at Salon de Marlene. Actually, Marlene is one of our dear friends who offered to help chop off my hair in my room. I was told having it cut shorter first is lass traumatic than shaving it off in one go. Once my hair starts falling off, then we'll just shave it off. Rob and I will have matching hairdo then - how sweet!
I received beautiful flowers from work yesterday, and more beautiful flowers today from the Arcadia Rotary. How thoughtful! As much as I would like to keep them in my room, I had leave them at the nurse's station and send them home with Rob because I'm not allowed to have them in my room. I also received a funny dvd from Manolo whom I haven't seen in ages. Manolo, if you're reading this, thank you! I don't have your email address here, so I'll have to email you through our common friends. I agree with your card - laughter is the best medicine. I miss you.
Special calls from my sister and friends near and far really brightened up my day. No friends like old friends! And the best part of the day is of course seeing my hubby and little ones. Since I was transferred to an isolation unit yesterday, they had to wear masks when they enter the room. So how do I kiss those cute little cheeks now? Also can't even kiss my husband. We all just settled for hugs and virtual kisses. How proper!
I feel more tired today than usual. The doctor said this is normal and warned me that it may get worse. Please pray that all I will quickly recover from the chicken pox and diarrhea and that there won't be any more virus or bacteria coming out.
Please continue to pray for my healing, for Robert not to get too tired from the double duty, and for the girls not to miss me too much while I'm in the hospital. Thank you once again for your concern and prayers and God bless you all.
Thursday, August 13, 2009
8/13/09 - Day 7 of Chemo
Last day of chemo! Actually, today is when I get the last dose of chemo. Since each bag runs 24 hours, my chemo won't really be done until tomorrow afternoon. And I thought it will be over by today. Oh well, just a few more hours. So far, no vomiting and other usual side effects.
Now that my white blood cells are down to 0.4, whatever virus or bacteria I have in my body will come out and manifest itself, right? Well, one of them came out today - chicken pox! Yes, I started getting little bumps on my scalp last night (there's my motivation to shave! ha! ha!), thought it was just an allergic reaction to the shampoo cap. It spread to my upper arms by this afternoon. The doctor said it is varicella, or to people like me who don't understand medical terms, chicken pox. I got it from myself. So it's off to the isolation for me! Maybe it's just their subtle way of telling me not to be too chatty with the nurse and staff. :-) I hate giving up my "suite", but apparently the air in the isolation room is better, so that should be good.
To many people, chicken pox may sound terrible (yes, it's very itchy), but in my mind, I keep thinking it could be worse than chicken pox. There's an endless list of things that could go wrong, and I'd rather have chicken pox than something worse. Please keep praying for me. In addition to my requests yesterday, that the antibiotics they put in me will keep the chicken pox and other harmful bacteria or virus at bay.
On the brighter side, I had an amazing revelation today: my oncologist, Dr. Cynthia Martel, is a real live Doogie Howser! Some nurses told me that she was one of the youngest doctors here years ago, and that she's like a genius of some sort. She was very open and humble when I her asked about it. She started medical school at 11 (gulp!), but she quickly added that it took her the same number of years to finish medical school and a PhD. Okay, but I'll bet she's only putting in half the study time of most students. Dr. Martel actually met the actor. I'm sure both of them were pleased to have met the other. Wow! What a blessing! I owe Cristina a big one.
As always, it was heart-warming to hear from my mom and my sister, relatives and friends who called, and to read email and text messages from everyone. An extra treat was to get a visit from my dear friends from Texas, Josephine and George, who came to LA to attend a family event.
That's it for today. Thank you all for your prayers and God bless you.
Now that my white blood cells are down to 0.4, whatever virus or bacteria I have in my body will come out and manifest itself, right? Well, one of them came out today - chicken pox! Yes, I started getting little bumps on my scalp last night (there's my motivation to shave! ha! ha!), thought it was just an allergic reaction to the shampoo cap. It spread to my upper arms by this afternoon. The doctor said it is varicella, or to people like me who don't understand medical terms, chicken pox. I got it from myself. So it's off to the isolation for me! Maybe it's just their subtle way of telling me not to be too chatty with the nurse and staff. :-) I hate giving up my "suite", but apparently the air in the isolation room is better, so that should be good.
To many people, chicken pox may sound terrible (yes, it's very itchy), but in my mind, I keep thinking it could be worse than chicken pox. There's an endless list of things that could go wrong, and I'd rather have chicken pox than something worse. Please keep praying for me. In addition to my requests yesterday, that the antibiotics they put in me will keep the chicken pox and other harmful bacteria or virus at bay.
On the brighter side, I had an amazing revelation today: my oncologist, Dr. Cynthia Martel, is a real live Doogie Howser! Some nurses told me that she was one of the youngest doctors here years ago, and that she's like a genius of some sort. She was very open and humble when I her asked about it. She started medical school at 11 (gulp!), but she quickly added that it took her the same number of years to finish medical school and a PhD. Okay, but I'll bet she's only putting in half the study time of most students. Dr. Martel actually met the actor. I'm sure both of them were pleased to have met the other. Wow! What a blessing! I owe Cristina a big one.
As always, it was heart-warming to hear from my mom and my sister, relatives and friends who called, and to read email and text messages from everyone. An extra treat was to get a visit from my dear friends from Texas, Josephine and George, who came to LA to attend a family event.
That's it for today. Thank you all for your prayers and God bless you.
Wednesday, August 12, 2009
8/12/09 - Day 6 of Chemo
I stayed up too late last night blogging. tsk! tsk! tsk! Won't do it again tonight - that was foolish. I woke up late this morning to really good news - Cristina, my best friend in LA, has been assigned to be my nurse today. Yehey! I know I will be in good hands, and I will get to see more of her.
Sixth day of chemo and no side effects so far except for the slight soar throat and semi-diarrhea (the milk of magnesia worked too well).
I'm getting to the crucial part of the treatment. Just one day left of chemo, that means only one day left for the drug to wipe out all the bad cells in my body and in my bone marrow. Please pray really hard that all the bad cells will be wiped out all the way to my bone marrow. Also pray that even sources of future bad cells will be wiped out - this part is science fiction, because I have no idea why some cells come out good and some cells come out bad. You can have your own version of the sci-fi, just pray that once the bad cells are gone, that they will never, ever reappear.
With my white blood cells almost wiped out leaving my body defenseless against any bacteria or virus, please pray that I will not suffer from any problems in my major organs (kidney, liver, heart, lungs), and all the other potential side effects of chemo.
On the lighter side, do you know how astronauts wash their hair in outer space? They use a shampoo cap. Seriously! I used it today - it was first invented for astronauts I was told. It looks like a shower cap with gooey stuff inside when microwaved. Then, just put the cap on, massage the scalp, and dry the hair. High tech, huh? Too bad it didn't work very well. I would still rather shampoo my hair the old fashioned way. Interesting, though.
I had a restful day today - no visitors except my favorite visitors - Rob, Katie & Ellie. I was finally able to respond to messages that's been sitting in my inbox for days. Once again, I am touched by all the kind words and words of encouragement flowing from my friends and relatives. Just knowing that many people are rooting for me and praying for my healing gives me a boost - no need for the Monster drink. Also got the great news that my sister, Verna, will be arriving in a couple of weeks!
I'm getting sleepy. Boy, the chemo is so toxic that my tears sting my eyes! The chemo drug passes out of my body through my tears, sweat and urine. I was required to cover the receptacle that collects my urine because the fumes are toxic. Why collect it? They want to keep track of my fluid intake and urine to make sure my kidney is working properly. Sorry to those who find this part offensive.
Okay, time to get ready for bed. I thank God for another good day. Thank you once again for your prayers. Please keep praying for me and my family.
Sixth day of chemo and no side effects so far except for the slight soar throat and semi-diarrhea (the milk of magnesia worked too well).
I'm getting to the crucial part of the treatment. Just one day left of chemo, that means only one day left for the drug to wipe out all the bad cells in my body and in my bone marrow. Please pray really hard that all the bad cells will be wiped out all the way to my bone marrow. Also pray that even sources of future bad cells will be wiped out - this part is science fiction, because I have no idea why some cells come out good and some cells come out bad. You can have your own version of the sci-fi, just pray that once the bad cells are gone, that they will never, ever reappear.
With my white blood cells almost wiped out leaving my body defenseless against any bacteria or virus, please pray that I will not suffer from any problems in my major organs (kidney, liver, heart, lungs), and all the other potential side effects of chemo.
On the lighter side, do you know how astronauts wash their hair in outer space? They use a shampoo cap. Seriously! I used it today - it was first invented for astronauts I was told. It looks like a shower cap with gooey stuff inside when microwaved. Then, just put the cap on, massage the scalp, and dry the hair. High tech, huh? Too bad it didn't work very well. I would still rather shampoo my hair the old fashioned way. Interesting, though.
I had a restful day today - no visitors except my favorite visitors - Rob, Katie & Ellie. I was finally able to respond to messages that's been sitting in my inbox for days. Once again, I am touched by all the kind words and words of encouragement flowing from my friends and relatives. Just knowing that many people are rooting for me and praying for my healing gives me a boost - no need for the Monster drink. Also got the great news that my sister, Verna, will be arriving in a couple of weeks!
I'm getting sleepy. Boy, the chemo is so toxic that my tears sting my eyes! The chemo drug passes out of my body through my tears, sweat and urine. I was required to cover the receptacle that collects my urine because the fumes are toxic. Why collect it? They want to keep track of my fluid intake and urine to make sure my kidney is working properly. Sorry to those who find this part offensive.
Okay, time to get ready for bed. I thank God for another good day. Thank you once again for your prayers. Please keep praying for me and my family.
Tuesday, August 11, 2009
8/11/09 - Day 5 of Chemo
Another beautiful day! No side effects except constipation maybe from the lack of fiber in my diet and the beginnings of a sore throat. I've been gargling with hot salt and soda water to kill whatever bacteria may be growing in my throat.
Another day filled with love from relatives and friends who called and visited and texted and I'm sure there are more email messages that I had no time to read yet. I am truly blessed! My sister is coming over, and I am excited to see her!
Bonus blessing for the day: I got moved to a bigger room! My old room was already very nice, but the Filipino nurse in charge of assigning rooms asked if I would like to be moved to a bigger room. I asked if it also has a view, and it does! Yes, yes, and yes! There are only a couple of these corner rooms - they're bigger and quieter because it is farther from the nurse's station and there's only one room next to it. God is full of pleasant surprises!
I met the social worker in the hospital who gave me information about state disability program - I will get some money from the state for a year while being sick! That's great news! It is one of the advantages of living in California - not all states have it. It's not much, but I'll take it. I just hope it doesn't come as an IOU check just like our tax refund. :-)
The highlight of my day is again spending some time with my wonderful husband and 2 adorable girls. Every minute I can spend with them is a blessing. I have taken spending time with them for granted until the sickness made me realize that I don't really know how much time I have with them, and that I should treasure it everyday.
That's it for now. Please keep praying for me. Please pray that I will have zero side effects tomorrow and the next day, and that whatever remaining bad cells in my body will be totally wiped out. Thank you again and I love you all!
Another day filled with love from relatives and friends who called and visited and texted and I'm sure there are more email messages that I had no time to read yet. I am truly blessed! My sister is coming over, and I am excited to see her!
Bonus blessing for the day: I got moved to a bigger room! My old room was already very nice, but the Filipino nurse in charge of assigning rooms asked if I would like to be moved to a bigger room. I asked if it also has a view, and it does! Yes, yes, and yes! There are only a couple of these corner rooms - they're bigger and quieter because it is farther from the nurse's station and there's only one room next to it. God is full of pleasant surprises!
I met the social worker in the hospital who gave me information about state disability program - I will get some money from the state for a year while being sick! That's great news! It is one of the advantages of living in California - not all states have it. It's not much, but I'll take it. I just hope it doesn't come as an IOU check just like our tax refund. :-)
The highlight of my day is again spending some time with my wonderful husband and 2 adorable girls. Every minute I can spend with them is a blessing. I have taken spending time with them for granted until the sickness made me realize that I don't really know how much time I have with them, and that I should treasure it everyday.
That's it for now. Please keep praying for me. Please pray that I will have zero side effects tomorrow and the next day, and that whatever remaining bad cells in my body will be totally wiped out. Thank you again and I love you all!
Monday, August 10, 2009
Prayer Requests
Please pray that I will keep my mind focused on God and to abide in Him. Please also pray for protection from the attacks of the devil. I want this to be a positive spiritual experience. That this will be an exercise in seeing God's grace despite the daunting circumstances. Note: sending me bible verses from time to time will surely help along the way.
Please pray for my family as we adjust to our new reality. For Robert, that he will not be exhausted from the double duty of being a father and mother to the kids while I am away. That his boss and coworkers will be understanding and supportive. That our faith will remain strong. That the kids will not have a hard time adjusting to my absence while I'm in the hospital. That we will not resent the circumstances or God or grow bitter if things do not happen as we had hoped. And that we will not doubt the goodness of God.
During my chemo which lasts 7 days, please pray for no side effects: fatigue, nausea, vomiting, mouth sores, pain, flu-like symptoms, constipation or diarrhea, anemia, bleeding, infection, and other less common side effects including potential problems with vital organs: kidney, liver, heart & lungs. Hair loss is inevitable with my treatment, so please pray that I will take it well when I see my beautiful shiny head. Most importantly, please pray that the chemo will wipe out the bad cells completely and no bad cells will grow back after this chemo. All things are possible with God.
After chemo, my body will be defenseless against any virus and bacteria, so I will be very susceptible to infection and other problems similar to the ones mentioned above. Please pray for protection from virus and bacteria in own body, other people and the environment. Also pray that the doctors and staff will be attentive enough to detect any problems early and the wisdom to apply the right solution.
Please pray for the doctors, nurses, aides, technicians and any other people involved in my healing. That God will grant them the wisdom to make the right decisions and the ability to execute their jobs well. That they will be an extension of God's healing grace.
Tired yet? I am. I will update this list with other prayer requests along the way as I know more about what is going on and as the need arises such as having a bone marrow transplant - it is my hope that this will not be necessary.
Thank you again for all your prayers. God bless you all.
Please pray for my family as we adjust to our new reality. For Robert, that he will not be exhausted from the double duty of being a father and mother to the kids while I am away. That his boss and coworkers will be understanding and supportive. That our faith will remain strong. That the kids will not have a hard time adjusting to my absence while I'm in the hospital. That we will not resent the circumstances or God or grow bitter if things do not happen as we had hoped. And that we will not doubt the goodness of God.
During my chemo which lasts 7 days, please pray for no side effects: fatigue, nausea, vomiting, mouth sores, pain, flu-like symptoms, constipation or diarrhea, anemia, bleeding, infection, and other less common side effects including potential problems with vital organs: kidney, liver, heart & lungs. Hair loss is inevitable with my treatment, so please pray that I will take it well when I see my beautiful shiny head. Most importantly, please pray that the chemo will wipe out the bad cells completely and no bad cells will grow back after this chemo. All things are possible with God.
After chemo, my body will be defenseless against any virus and bacteria, so I will be very susceptible to infection and other problems similar to the ones mentioned above. Please pray for protection from virus and bacteria in own body, other people and the environment. Also pray that the doctors and staff will be attentive enough to detect any problems early and the wisdom to apply the right solution.
Please pray for the doctors, nurses, aides, technicians and any other people involved in my healing. That God will grant them the wisdom to make the right decisions and the ability to execute their jobs well. That they will be an extension of God's healing grace.
Tired yet? I am. I will update this list with other prayer requests along the way as I know more about what is going on and as the need arises such as having a bone marrow transplant - it is my hope that this will not be necessary.
Thank you again for all your prayers. God bless you all.
Sunday, August 9, 2009
8/5/09 - Tests, tests, and more tests
It was nighttime by the time we I admitted to the Huntington Memorial Hospital in Pasadena. We had fond memories of this hotel, because both our kids were born here. They try to make the patients in this hotel feel like they're not in a hospital that I often mistakenly call it a hotel. It's a blessing that my insurance can cover my stay here. Double blessing that one of my best friends is a nurse in the oncology department!
When we got to my room, I saw the third blessing - a room with a view! I have the view of the mountain range and lush trees. According to the nurse, only patients on this side of the 6th floor get the nice view. I even got a wide screen plasma TV, a wi-fi and a big bathroom! God really loves me.
Robert and the girls said good-bye and the flurry of activities began: nurses, aides, and technicians were in and out of my room taking my blood pressure, temperature, blood oxygen level, I got interviewed, poked for more blood and for the drip, and got my first first taste of blood - and I don't mean the Filipino dish "dinuguan". I got 2 units of blood (700 ml) - yum! By the way, found out my blood type is A+, just like my grades at school! ha! ha! ha!
Morning came and the flurry of activities started again: more measuring, more poking, more blood, and this time the doctor came to do the biopsy. The doctor gave me some lidocaine and stuck 2 needles through my back hips to my bone marrow. OOOOOOUCH!!! It was like giving birth all over again!
It takes 24 hours to get the results of the biopsy, so the rest of the day was uneventful except for the lingering pain from the biopsy. It allowed me to place more phone calls and get more administrative things done.
The text messages and phone calls to and from my family in the Manila made me realize again how much my family means to me, and how blessed I am to have been part of that family!
When we got to my room, I saw the third blessing - a room with a view! I have the view of the mountain range and lush trees. According to the nurse, only patients on this side of the 6th floor get the nice view. I even got a wide screen plasma TV, a wi-fi and a big bathroom! God really loves me.
Robert and the girls said good-bye and the flurry of activities began: nurses, aides, and technicians were in and out of my room taking my blood pressure, temperature, blood oxygen level, I got interviewed, poked for more blood and for the drip, and got my first first taste of blood - and I don't mean the Filipino dish "dinuguan". I got 2 units of blood (700 ml) - yum! By the way, found out my blood type is A+, just like my grades at school! ha! ha! ha!
Morning came and the flurry of activities started again: more measuring, more poking, more blood, and this time the doctor came to do the biopsy. The doctor gave me some lidocaine and stuck 2 needles through my back hips to my bone marrow. OOOOOOUCH!!! It was like giving birth all over again!
It takes 24 hours to get the results of the biopsy, so the rest of the day was uneventful except for the lingering pain from the biopsy. It allowed me to place more phone calls and get more administrative things done.
The text messages and phone calls to and from my family in the Manila made me realize again how much my family means to me, and how blessed I am to have been part of that family!
8/6/09 - "You have Leukemia"
The oncologist who took my biopsy came back with the diagnosis: "It is confirmed. You have Leukemia." What I have is Acute Myelogenous Leukemia or AML, type M1. The most likely treatment for me will be 2 rounds of chemotherapy, then a bone marrow transplant - 70% probability. There's a 20% chance that it may take more than 2 rounds of chemotherapy before a bone marrow transplant can be done, and a 10% chance that I won't survive.
The best source of stem cells for the bone marrow transplant is from siblings. Each sibling has a 1/4 chance of being a cell match. With 6 siblings, I have a very good chance to have a match in my family. A blood sample from them will uncover who is/are my cell match. Although I am relieved to know that I have so many siblings who are potential donors, and that any one of them will be more than willing to do this for me, I couldn't bear the thought of any of them having to go through any kind of pain because of me! Not to mention someone having to leave their family for 2 months to be in LA for the procedure.
I requested for a second opinion from the oncologist recommended by Cristina, my friend who works there. In her view, there was not enough data available at this time to conclude that a bone marrow transplant is required. After the first round of chemo, more tests will be done to determine the next step. Best case scenario is 4 months of chemo and I'm done. Worst case scenario is bone marrow transplant. Of course, there's also a slight chance that I may not survive it. Whew! I hope I won't need a bone marrow transplant. That's good news.
It was a huge blessing that Christina knows these doctors well enough to recommend the best doctor for me. In my brief interaction with both doctors and based on their diagnosis, recommendation and personalities, I think I will be a happier patient with Cristina's recommendation. Thank you, Lord!
Robert and I wasted no time in spreading the news and asking for prayers from family and friends. Time to gear up and fight!
The best source of stem cells for the bone marrow transplant is from siblings. Each sibling has a 1/4 chance of being a cell match. With 6 siblings, I have a very good chance to have a match in my family. A blood sample from them will uncover who is/are my cell match. Although I am relieved to know that I have so many siblings who are potential donors, and that any one of them will be more than willing to do this for me, I couldn't bear the thought of any of them having to go through any kind of pain because of me! Not to mention someone having to leave their family for 2 months to be in LA for the procedure.
I requested for a second opinion from the oncologist recommended by Cristina, my friend who works there. In her view, there was not enough data available at this time to conclude that a bone marrow transplant is required. After the first round of chemo, more tests will be done to determine the next step. Best case scenario is 4 months of chemo and I'm done. Worst case scenario is bone marrow transplant. Of course, there's also a slight chance that I may not survive it. Whew! I hope I won't need a bone marrow transplant. That's good news.
It was a huge blessing that Christina knows these doctors well enough to recommend the best doctor for me. In my brief interaction with both doctors and based on their diagnosis, recommendation and personalities, I think I will be a happier patient with Cristina's recommendation. Thank you, Lord!
Robert and I wasted no time in spreading the news and asking for prayers from family and friends. Time to gear up and fight!
Introduction
Hello, everyone! As you all know, I have just started a challenging journey in my life. One that will be filled with new adventures and great challenges. I know it will be tremendously difficult for me to go on this journey all by myself, so I have asked all of you to support me along this journey with your prayers.
Robert and I put the word out as soon as it was confirmed that I have Leukemia. There was an immediate outpouring of support and offers to help and pray for our family. We were deeply touched by the love from our family, and from friends near and far. In times like these, one gets to truly appreciate the priceless and lasting gift of love. This is better than winning the lottery!
In between getting procedures done at the hospital and resting, I kept myself busy entertaining visitors, answering phone calls, emails and text messages from you. It was heart-warming to see you, hear from you and/or read what you all had to say. Your words of encouragement and wisdom, advise, jokes and laughter all make my day a lot brighter. Thank you for all for your concern, prayers and your commitment to continue praying for us. I would like to let each of you know how your prayers are being answered and update you on what is going on so that your prayers will be specific and timely, and therefore more effective. To be practical about it, I cannot call and/or write each of you about what's going on or the doctors will confiscate my laptop and strap me to my bed. So, I decided to start a blog so I can post my updates when I feel up to it, and you can read about this adventure at your leisure. It also helps me keep a journal about this extraordinary experience. Of course, I still look forward to hearing from you, but my written response may be delayed. Thank you once again for your love and your prayers for me and my family. May our journey be short and filled with wonderful adventures of the soul.
Robert and I put the word out as soon as it was confirmed that I have Leukemia. There was an immediate outpouring of support and offers to help and pray for our family. We were deeply touched by the love from our family, and from friends near and far. In times like these, one gets to truly appreciate the priceless and lasting gift of love. This is better than winning the lottery!
In between getting procedures done at the hospital and resting, I kept myself busy entertaining visitors, answering phone calls, emails and text messages from you. It was heart-warming to see you, hear from you and/or read what you all had to say. Your words of encouragement and wisdom, advise, jokes and laughter all make my day a lot brighter. Thank you for all for your concern, prayers and your commitment to continue praying for us. I would like to let each of you know how your prayers are being answered and update you on what is going on so that your prayers will be specific and timely, and therefore more effective. To be practical about it, I cannot call and/or write each of you about what's going on or the doctors will confiscate my laptop and strap me to my bed. So, I decided to start a blog so I can post my updates when I feel up to it, and you can read about this adventure at your leisure. It also helps me keep a journal about this extraordinary experience. Of course, I still look forward to hearing from you, but my written response may be delayed. Thank you once again for your love and your prayers for me and my family. May our journey be short and filled with wonderful adventures of the soul.
Saturday, August 8, 2009
Welcome to My Adventure
To say that life threw a curve ball my way is an understatement. One day, I was concerned about getting the air-conditioning in my car fixed, the next day I was wondering whether I will live long enough to drive my car again. Here's a little background...
My family spent 2 wonderful weeks in Manila with a side trip to Cebu - celebrated my mom's 80th birthday and reconnected with family and friends we haven't seen in over 7 years. One gets to appreciate the greatest blessings in life - family and friends... and food! We got to spend some time in Cebu Shangri-la where we enjoyed some quiet family time, and I got the best spa treatment I ever had. Life was good. Coming back to LA, we were greeted by the worst jet lag we've ever had - 2 weeks long! While recovering from jet lag, I caught the flu. Both flu and jet lag were gone in a couple of weeks, but I still felt tired and weak. I would also get dizzy sometimes when I get out bed or even just standing up from a chair. I also heard throbbing between my ears - something's wrong. Time to call the doctor. The soonest appointment I could get with a doctor for a check-up was the following Monday, 8/3/09. Fine. In the meantime, I went to see a homeopathic doctor to see what can be done while waiting for my appointment. He told me I have a "bug" and that it had spread to my lymph nodes. The assistant massaged my lymph nodes to drain it and the doctor sent me away with a bottle of pills and asked me to come back in two weeks.
8/3/09 - I went to see the regular doctor, and she had some blood drawn to figure out what was wrong.
8/4/09 - I was not feeling well so I stayed at home. The kids wanted to have more mommy time, so I let them skip a day at summer camp. The doctor called in the afternoon. Bad news. The blood test results are in. She thinks I have leukemia and wanted me to go to a hospital ASAP for further tests. WHAT?!?! I had to call our benefits department and insurance company right away to see which hospitals and doctors were covered (this is America). Called my best friend in LA who happens to be a nurse in my chosen hospital to get recommendations about doctors and what to bring to the hospital. Called the doctor back to talk about hospitals and doctors. What do I do with the kids if I have to leave before Robert gets home? Called the HR department and my assistant to break the news to her and leave some instructions while I'm gone. I was going through these tasks like a Zombie, not really knowing what it all meant but fearing the worst. Placed a call to Robert to give him the bad news and figured out logistics for the kids. Started packing and placed a call to my mom to let her know the bad news and to ask her to pray for me. Then, it was just a matter of waiting for the hospital to call to let me know the next step. Robert came home in the meantime. I had to break the news to the girls: mommy is sick and will be staying in the hospital for a few nights until the doctors can find out what's wrong with her. The kids were sad and Katie said, "I hope this sickness doesn't lead to death." From her lips to God's ears! The the hospital called, and my adventure began...
My family spent 2 wonderful weeks in Manila with a side trip to Cebu - celebrated my mom's 80th birthday and reconnected with family and friends we haven't seen in over 7 years. One gets to appreciate the greatest blessings in life - family and friends... and food! We got to spend some time in Cebu Shangri-la where we enjoyed some quiet family time, and I got the best spa treatment I ever had. Life was good. Coming back to LA, we were greeted by the worst jet lag we've ever had - 2 weeks long! While recovering from jet lag, I caught the flu. Both flu and jet lag were gone in a couple of weeks, but I still felt tired and weak. I would also get dizzy sometimes when I get out bed or even just standing up from a chair. I also heard throbbing between my ears - something's wrong. Time to call the doctor. The soonest appointment I could get with a doctor for a check-up was the following Monday, 8/3/09. Fine. In the meantime, I went to see a homeopathic doctor to see what can be done while waiting for my appointment. He told me I have a "bug" and that it had spread to my lymph nodes. The assistant massaged my lymph nodes to drain it and the doctor sent me away with a bottle of pills and asked me to come back in two weeks.
8/3/09 - I went to see the regular doctor, and she had some blood drawn to figure out what was wrong.
8/4/09 - I was not feeling well so I stayed at home. The kids wanted to have more mommy time, so I let them skip a day at summer camp. The doctor called in the afternoon. Bad news. The blood test results are in. She thinks I have leukemia and wanted me to go to a hospital ASAP for further tests. WHAT?!?! I had to call our benefits department and insurance company right away to see which hospitals and doctors were covered (this is America). Called my best friend in LA who happens to be a nurse in my chosen hospital to get recommendations about doctors and what to bring to the hospital. Called the doctor back to talk about hospitals and doctors. What do I do with the kids if I have to leave before Robert gets home? Called the HR department and my assistant to break the news to her and leave some instructions while I'm gone. I was going through these tasks like a Zombie, not really knowing what it all meant but fearing the worst. Placed a call to Robert to give him the bad news and figured out logistics for the kids. Started packing and placed a call to my mom to let her know the bad news and to ask her to pray for me. Then, it was just a matter of waiting for the hospital to call to let me know the next step. Robert came home in the meantime. I had to break the news to the girls: mommy is sick and will be staying in the hospital for a few nights until the doctors can find out what's wrong with her. The kids were sad and Katie said, "I hope this sickness doesn't lead to death." From her lips to God's ears! The the hospital called, and my adventure began...
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